Sienna's story
When Sienna was just 4 weeks old, her parents, Kiara and Matt, noticed something unusual about her vision. Following numerous tests, when Sienna was 7 months old, she was diagnosed with Leber’s congenital amaurosis, a rare genetic condition resulting in vision loss and blindness.
Kiara and Matt were referred to Vision Australia by Sienna’s ophthalmologist during one of her early appointments. Within two days, Vision Australia contacted the family to assist with early intervention and NDIS support.
“Things happened fast, and although very confronting, I don’t know where we would be without the support, education, and guidance of Vison Australia,” Kiara explains. “Things became less scary because of how supported we were,” she adds.
“Our little girl Sienna is now a busy two-year-old who loves to explore. We hope she grows up to be a strong independent lady, who can tackle any challenge that comes her way. She is already proving to us that she can do everything every other child can her age, just in her own way and time. We feel so proud to be her parents and watching her learn and develop is really beautiful,” Kiara continues.
To connect with and support other families just like theirs, Santa Fun Run has become a new Christmas tradition for their family. Last year, Kiara and Matt raised an incredible $10,000 through the generosity of their family and friends and were thrilled with the opportunity to educate others on Sienna’s condition and what it means to be blind.
“The day itself was full of fun and activities for the little one, and we met other families who are affected by vision impairment that we now call our friends,” says Kiara. “It feels so nice to be part of vision Australia's community and we can't wait for the 2025 Santa fun run, if you see us there make sure you say hi!"
Every dollar raised from Santa Fun Run supports the education and development of kids just like Sienna. You can help make spirits bright and transform young lives this Christmas with a donation to Santa Fun Run.
