Sienna's story

When Sienna was just 4 weeks old, her parents, Kiara and Matt, noticed something unusual about her vision. Following numerous tests, when Sienna was 7 months old, she was diagnosed with Leber’s congenital amaurosis, a rare genetic condition resulting in vision loss and blindness.

Kiara and Matt were referred to Vision Australia by Sienna’s ophthalmologist during one of her early appointments. Within two days, Vision Australia contacted the family to assist with early intervention and NDIS support.

“Things happened fast, and although very confronting, I don’t know where we would be without the support and guidance of Vison Australia,” Kiara explains.

“We hope that Sienna grows up to be a strong independent lady, who can tackle any challenge that comes her way. She is already proving to us that she can do everything every other child can her age, just in her own way and time. We feel so proud to be her parents and watching her learn and develop is really beautiful,” Kiara continues.

This festive season, Kiara and Matt look forward to spending time with loved ones and being present in the moment. Following Sienna’s diagnosis, they no longer take the little things for granted and prioritize quality time with their family.

To help spread some extra Christmas joy this year, Sienna’s loved ones will be partaking in Vision Australia’s Santa Fun Run, helping to raise vital funds and awareness for kids just like Sienna!

“If you can lend a helping hand, any amount can go a long way in helping children just like Sienna get the help they need early.  Vision Australia use the donations from others to help support families in the early days of diagnosis, which takes a significant amount of pressure off the parents of children suffering vision loss,” Kiara says.